ESPOIR DE NOISETTE AT THE TELETHON 2024

I went to Paris at the end of November 2024 to take part in the Telethon march for the charity Espoir de Noisettes, for which I volunteer as a Communications Consultant. Representing four vascular compression syndromes (Nutcracker, Crockett, Wilkie and Dunbar), these rare diseases are unfortunately so little known by the general public, but also and above all by doctors. Between misdiagnoses, endless diagnostic wavering and a lack of practical solutions for sufferers, these diseases have an impact on their daily lives (horrific pain, inability to hold down or find a job, have a social life, eat for some) and some people can die from them if misdiagnosed. I'm very proud to have taken part in the Telethon for this charity, which has achieved so much in just two years. After reaching this milestone, the Butterfly Effect campaign was launched to bring to light its work and raise funds for research. So take a look at the charity's website, share the posts in a story, check out the website, make a donation... Every gesture counts �� And well done to Anne-Maëlle, the association's president, for all the work she does for the association �� Website (in french): https://www.association-espoirdenoisette.org/